the first full day....

KIDS ARE AMAZING! Cameron is AMAZING!
Yesterday Cam had a long hard day. He didn't sleep well the first night because he was being so closely monitored and was being woken up about every hour. He has a huge team of doctors and nurses and we feel he is in the best hands. Dr. Morita the Neurologist is great we really like her and feel confident in her.
So yesterday Cam had to have a lumbar puncture (spinal tap) to get the fluid they needed to run the test to be sure that he had GB, he also had to have a pick line put in his arm. That was very stressful for him and he was really scared of getting another poke. He did GREAT though and came through great. He was really glad to have the IV out of his hand so that he could use his hands better. When he was coming out of the sedation he kept looking at me and saying "mom your face looks really really funny!"
Later in the day he had to have a swallow study to determine if his muscles in his throat were strong enough for him to eat. Had he not been able to pass this test he would have had to have a feeding tube put in. By this point he had not had anything to eat for over 48 hours and had not had much sleep at all, it took everything Mark and I and the Speech Therapists had to convince him to do the swallow study but he did it and passed with flying colors. HE COULD EAT!!! Nothing lifts the spirits like being told you can eat real food after almost 2 whole days of not being able to. When we got back to the room we looked at the room service menu and he ordered pancakes, french toast, oranges, orange juice. Between 4 and 7pm he ordered 4 times. Poor boy was starving and wanted to have a little bit of everything. So far he has kept up his appetite and even gets to order whole trays of dessert just for him!
Another boost to his day yesterday was that Colby and Jacob and Grandpa and Ryan and Julie and Nathaniel and Hilary and Emily came to visit. And Grandma and Grandpa Heap got here from Arizona. All of them arrived with a bag of surprises!! Cameron and Jake were so cute! Jake sat in the bed with Cam and they watched WIPE OUT videos on the computer. Colby drew Cam and really cool picture and told him he can't wait for him to be home so that they can stay up late talking in bed! Oh, and getting a Pirate Eye patch to wear because sometimes his eyes get wobbly and he sees two of everything. He thinks the eye patch is cool.
Last night I rode home with my parents and Mark stayed with Cameron. As much as I needed a good nights sleep and as much as I missed my baby Hayders and Colby and as much as I knew that Cameron was just fine with his dad, it was so so so so so hard to leave the hospital.
My head hit my pillow in my BIG SOFT very own bed and I was out like a light at 11:30 pm, my sweet baby was kind enough to wake up at 6am instead of his usual 8am. Oh the pain of not getting enough sleep!!!!!!!!!! I was able to go to Colby's last Jr. Jazz game and spend most of the day with my Hayder baby.

Before I end this day I have to tell the funniest part.

Cam had a really cool nurse named Dave, he was great with Cam. After Cam had woken up from the sedation and still had doctors hovering all around, he was really agitated and nervous about the next test and not having been able to eat, on top of just being in a lot of pain. Nurse Dave had the best idea of the day and asked Cam if he wanted to have a water fight with the doctors.

Cam said "SURE" as loud as his soft little voice could speak.

Dave handed him a syringe full of water and called in the resident doc. As soon as Dr. Buchanan walked in the door Cam nailed him with water!

Then Nurse Dave told Cam to trick Dr. Morita when he called her in. She walked in and Cam, in his softest voice, asked, "when can I eat?" she leaned in closer and said what honey? And Cam SOAKED her with water! IT WAS GREAT! Everyone got a good laugh out of that including the Doc. she was a really good sport. He squirted a few more people through the day and even got Ramon the Tech so that it looked like he peed his pants!