(picture of strength)Well, here we are in the hospital, for how long we don't know. They have said at least a couple of weeks, but I know that Cam is going to get better quicker than the doctors think, he's STRONG like that! For now though he thinks he is going to starve to death because they won't let him eat until after all the tests tomorrow. I keep telling him to be brave and that we brought him to the hospital to get better. He got mad at me and said, "you brought me here to starve me to death!" Feisty strong 5 year old he still is. He is going to set new standards of strength for this Guillain Barre Syndrome.
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5 comments:
Determination....that's what got Kason through and it looks like Cam's got it too! :) Hang in there!
So, what is Guilian Barre Syndrome? Is that the diagnosis?
Hang in there Cam, we love you!
FYI: Guillain-Barré syndrome is a disorder in which the body's immune system attacks part of the peripheral nervous system. The first symptoms of this disorder include varying degrees of weakness or tingling sensations in the legs. In many instances, the weakness and abnormal sensations spread to the arms and upper body. These symptoms can increase in intensity until the muscles cannot be used at all and the patient is almost totally paralyzed. In these cases, the disorder is life-threatening and is considered a medical emergency. The patient is often put on a respirator to assist with breathing. Most patients, however, recover from even the most severe cases of Guillain-Barré syndrome, although some continue to have some degree of weakness. Guillain-Barré syndrome is rare. Usually Guillain-Barré occurs a few days or weeks after the patient has had symptoms of a respiratory or gastrointestinal viral infection. Occasionally, surgery or vaccinations will trigger the syndrome. The disorder can develop over the course of hours or days, or it may take up to 3 to 4 weeks. No one yet knows why Guillain-Barré strikes some people and not others or what sets the disease in motion. What scientists do know is that the body's immune system begins to attack the body itself, causing what is known as an autoimmune disease. Guillain-Barré is called a syndrome rather than a disease because it is not clear that a specific disease-causing agent is involved.
http://www.ninds.nih.gov/disorders/gbs/gbs.htm
I also read that approximately 80% of patients have a complete recovery within a few months to a year.
Hang in there Cam...You are LOVED and we are all praying/fasting for you and your family.
What a sweet and tought little man!
April, you and your family are in our prayers. Cameron is one tough cookie, and has two awesome parents. Please keep us posted. I know that i'm not the only one who'll be checking your blog regularly for updates. We love you guys!!!
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